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A Life with Acromegaly
Acromegaly is a chronic metabolic disorder in which there is too much growth hormone and the body tissues gradually enlarge. It causes a lot of dreadful ‘freaky’ symptoms and makes you wish you could hide under your chair forever.
A life with Acromegaly – Part 4
MRI scans are uncomfortable machines. Sticking your head in a tube with industrial noise. Claustrophobic and quiet shocking. The best thing is to breathe slowly and to relax or sleep through it, although impossible because ...
A Life with Acromegaly – Part 3
Off to the hospital at 8 am for pre-operative tests. I did the same tests before in Abu Dhabi, but they lost half of the results. This hospital is an academic hospital and is supposed ...
A Life with Acromegaly – Part 2
The first symptoms of Acromegaly must have occurred some ten years ago. I remember my dad mentioning during a family get-together: ‘Wow son, your head keeps on getting bigger every time I see you!’ As ...
A Life with Acromegaly – Part 1
Abu Dhabi airport around midnight. Way too early and no check-in queues. Waiting for my flight to Brussels. Home. Trying to kill time writing in this diary. My future, my freaky condition, the operation and staying ...
A Life with Acromegaly (and getting rid of it)
Acromegaly gradually destabilizes the perception you have of yourself. Before I was diagnosed (in late 2009) or even before I ever heard the A word I used to draw people with large heads and hands. ...
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